The campaign "I do not shut up" aims to clarify the taboos that society, based on its conventions, has designated patients with HIV / AIDS, seeks empathy, equity and respect for those directly and indirectly affected through of performative panels, which as an original function, the panel, is designed to bring together expert exhibitors who can also be consulted. The concept "performativity" refers to the ability of some expressions to become actions and transform reality or the environment according to John L. Austin and Roland Barthes. (Barcelona, 2012).
The project was born from a priority need of the patient, who after this radical change in his life requires social inclusion for his well-being; But it is aimed mainly at the young and adult community that are not carriers of the virus or that at least do not know it and who need accurate information that allows them to know and clear their doubts, however, how we will get this information is the challenge principal.
To attract the attention and sensitize the observing participants; art, and performance in particular, will be our previous vehicles to achieve this objective, allowing the spectators to produce different realities together, who give meaning, build and embody in their present what they are living.
The performative panel is divided into 4 stages:
- Reception. Hostess in charge of welcoming and accompanying attendees to their places in a strategic way in order to provoke their sense of alertness and attention. Performance. The performance work is multidisciplinary, it embodies the life of risks and excesses in which we are easily involved. Made in two different versions, one for young people and the other for adults, in both cases it includes a dance montage where white bodies are shown that little by little will be stained by a red body. And previous videos showing different looks. Panel of specialists.Bringing together specialist physicians who generally present the problem on the subject, counting on information modules from institutions and support associations that in turn can perform rapid detection tests.
This project works with the support of non-profit institutions, organizations and civil associations that allow promoting the performance panel in auditoriums or adaptable spaces with an audience of between 100 and 300 attendees, disseminating information to the population of the different municipalities of the state.
Justification / Justification
(Medina, 2014) He writes the testimony of Paco N., 25, an engineering student and a salesperson for a job. A year ago he discovered that he has HIV, something that only three of his closest friends know, "because he does not want to be pitied," he says, and confesses his fear that, by taking the mandatory clinical examinations at the end of his career, is discriminated against to enter a job. "This is because of people's ignorance, because there is still fear of contagion, so it is good to read and know more about the disease," he says.
Paco receives medical attention at the CAPACITS, where he considers that there is a first class service, but he always goes with fear of seeing "who I am going to meet, because they can tell others, even though he is also a carrier".
The HIV / AIDS epidemic is still a great threat to public health in our country and in general throughout the world. According to the Summary of the Epidemiological Surveillance of the National Registry of AIDS Cases for the Second Quarter of 2014 (CENSIDA), there are 115,862 reported cases of HIV and AIDS that are alive according to registered evolution status.
In Guanajuato, the health secretary Francisco Ignacio Ortiz Aldana announced during the month of February that there are about 3 thousand 438 Guanajuato people who suffer from HIV-AIDS, ranking 15th nationally in terms of accumulated cases. (Quadratin, 2014)
During 2010, the National Council to Prevent Discrimination carried out the National Survey on Discrimination in Mexico (ENADIS), aimed at knowing the perception and tolerance of Mexicans in relation to various vulnerable groups, especially on the subject of AIDS. the attitude of people to live with someone living with AIDS. (INEGI, 2010)
In Guanajuato in this regard, it was identified that in terms of age groups, it is observed that the population aged 30 to 34 is the one that least agrees to live with someone with AIDS (13%), followed by people aged 65 to 69 (12.7 percent). Young people between 15 and 19 years old have the highest percentage of people who agree to live with AIDS patients (38.8%), followed by people between 30 and 34 years old (25.9 percent).
People willing to live with AIDS patients
Considering the level of education of the people interviewed, it is observed that the population with secondary and primary studies are the ones who mainly declare that they would not accept living with people with this condition (36.1 and 21.8%, respectively). However, they are also the groups that are more willing to live with them (94.4 and 34.4%, in that same order).
People willing to live with AIDS patients
However, there is no evidence that these statistics are tangible, since the majority of the population would be willing to live with a person with the disease, and there are still many who cannot speak. It is important to recognize the support provided to patients in public and private institutions and associations, however, even when the patient is capable of accepting his illness, the fear of exclusion and social rejection make him silent, putting his own risk. own health and even in some cases someone else's. (Nelson Varas-Díaz & José Toro-Alfonso) They describe in their work "The Stigmatization of HIV / AIDS and Gregarious Life" that some researchers have argued that we live in a dual epidemic: one biological and the other of meanings,so the stigma related to HIV offers a perspective of rejection and marginalization to people living with the virus. Feasible reason why the epidemic should be conceptualized in the light of the social conditions that surround it.
7 Where can I go from your spirit? And where will I flee from your presence? 8 If I go up to heaven, you are there; and if he made a platform in sheol, there you are (United Bible Societies, 1995) in the Christian Catholic religion, Protestant; God refers to the absolute truth, and the disease may not be God but it is a reality that wherever we go there it will be and those who are silent only keep an open secret that sooner or later will be discovered.
I refer to all this because this campaign, more than the exhibition, seeks a fundamental point, that society understands that being a carrier of HIV / AIDS is not a human deformity, but rather a disease that, like someone who lives with diabetes, requires some care and attention. On the other hand, it has an ambitious goal, which is prevention based on the communication of the patient feeling free and confident to express their condition in order to promote safe sex.
The first case of AIDS in Mexico was diagnosed in 1983, although according to retrospective analysis and other public health research techniques, the beginning of the HIV epidemic can be located in 1981. (SS TAMAULIPAS) HIV or Immunodeficiency Virus Humana is a microorganism that attacks people's immune systems, weakening it and making them vulnerable to a number of infections, some of which are life-threatening. The HIV / AIDS virus parasitizes the white blood cells of the human body, destroying them or preventing them from fulfilling their function properly. (INSPIRACTION, 2014)
In many countries and communities, the stigma associated with HIV and the resulting discrimination can be as devastating as the disease itself: abandonment by a spouse or family, social isolation, loss of job or property, expulsion of school, denial of medical services, lack of care and support, and violence. These consequences, or fear of suffering them, mean that people are less likely to use HIV testing; disclose your HIV status to others; adopt a preventive behavior in relation to HIV; or access treatment, care and support.
In recent years, researchers and health workers have made significant progress in identifying the causes and dimensions of stigma and discrimination, and have developed practical tools for multi-target programs and standard measures for evaluating programs. This work has culminated in a set of general principles for addressing stigma and discrimination, finding that the most promising approaches to reducing stigma and discrimination present a combination of the following strategies: empowering people living with HIV, up-to-date education about HIV, and activities that encourage direct or indirect interaction between people living with HIV and key audiences. (UNAIDS, 2008)
“Today we live in a hurry and it is in this race of life where we leave behind human bonds; but living immersed in this 'liquidity' that translates into an accelerated lifestyle, we are far from allowing 'distraction' in the affairs of the other, ”(Leonidas Donskis, 2012) called by Zygmunt Bauman“ liquid ”modernity.
Currently various organizations are concerned about stigma and discrimination, however in our current society submerged in this current (liquid modernity) we forget to listen to those who need to speak, getting our attention is a challenge without hesitation, but if we remove barriers, preventing the fall is what we could achieve.
Background
In 2001, the International Federation decided to fight HIV-related stigma and discrimination through its network of 181 National Societies. "As the largest humanitarian organization in the world with millions of volunteers and established humanitarian principles and values, we have an obligation to make communities accept and embrace people with HIV / AIDS," explains Juan Manuel Suárez del Toro, president of the International Federation. From this idea came the global campaign “The Truth About AIDS. Pass it on… "
On May 8, 2002 the campaign began, around the world, Red Cross and Red Crescent staff and volunteers played a leading role in mobilizing communities, on May 8, 2003 a e-forum, a virtual platform that allows Movement staff and volunteers to exchange information and discuss their experiences from HIV / AIDS programs and stigma reduction efforts.
At first, some National Societies were reluctant to join the campaign and many others allowed time to pass before partnering with networks of people living with HIV / AIDS. However, it was realized that it was urgent to contain the pandemic and face the disastrous consequences of stigma and discrimination.
National Societies organized hundreds of events to promote the message of the campaign. From street theater performances in Malawi and graffiti artists in Switzerland to a three-day workshop in Iran, there has been no shortage of imagination to spread the truth about AIDS. However, after two years of the dissemination of the successful campaign, most of the participants agreed that it should be expanded and an integrated effort promoted. “Stigma and discrimination remain at the heart of the IFRC's Global Program on HIV / AIDS, but after two years of campaigning it would be more relevant to continue with a stigma reduction program that encompasses integrated awareness-raising activities », Explains Bernard Gardiner (Lucard, 2014)
Overall objective
Carry out a performative panel with information that promotes social inclusion and empathy towards patients with HIV-AIDS, through the combination of an exhibition technique and performance art, accompanied by institutions, organizations and / or non-profit associations, from the city that support the diffusion and promotion to carry out 12 activations from April 2015.
Specific objectives
- Adapt the performing art to an exhibition technique through the realization of the performative panel. Encourage the participation of patients within the project through an awareness workshop that will be held prior to the presentation at the location where it will be presented. of the institutions, associations or organizations that provide tools for the realization and presentation. Promote and disseminate the performative panel in the local media and social networks with the name of the “Yo No Me Callo” campaign.
Target goals
MO1 Have 12 artists to carry out the interdisciplinary performance who will also act as technicians and facilitators.
MO2 Schedule a workshop in which patients and artists get involved in order to generate empathy and awareness.
MO3 Create links with institutions interested in informing the population that provide support from specialists and spaces where it will be presented.
MO4 Disseminate and publicize the campaign through the internet and local media on radio and television, before, during and after the initial presentation to be held in April 2015.
Schedule
It is attached to the Excel file under the heading Balance and Schedule.
Expected results
1.- Promotion of the arts in direct function of education and society.
2.- Adoption of the project by the Federal Government for dissemination throughout the republic.
3.- The insertion of the performative exhibition as an important tool in our current society.
Social benefit
Bring art and information to any social sector, because the project seeks access at no cost to those interested.
Community benefit
Generate links with new institutions in order to create a presence of the arts in other professional fields.
TO KNOW THE PROCESS THAT IS TAKEN REGARDING THE PROJECT (VIDEOS AND PROGRESS) VISIT THE FACEBOOK PAGE: www.facebook.com/ionomecallo
Bibliography
- Barcelona, C. d. (August 31, 2012). Glossary 03. Performativity (after John L. Austin and Roland Barthes). Obtained from http://granerbcn.cat/performatividad-1-segun-john-l-austin-y-roland-barthes/CENSIDA. (sf). http://www.censida.salud.gob.mx/. Retrieved on September 16, 2014, from http://www.censida.salud.gob.mx/descargas/epidemiologia/RN_2do_trim_2014_2.pdfINEGI. (2010). http://www.inegi.org.mx/. (IN Geografía, Ed.) Retrieved on OCTOBER 25, 2014, from http://www.inegi.org.mx/inegi/contenidos/espanol/prensa/contenidos/estadisticas/2012/juventud12.asp?c=2844&INSPIRACTION. (2014). Retrieved on 10/26/2014, from https://www.inspiraction.org/salud/sida/historia-del-sidaLeonidas Donskis, (. L. (May 7, 2012). The evil of 'liquid modernity'. (PE RODRÍGUEZ, Interviewer) Medina, S. (September 22, 2014).Group of 25 to 49 years, the most exposed to HIV in the state. Mail. Nelson Varas-Díaz, P., & José Toro-Alfonso, P. (sf). The Stigmatization of HIV / AIDS and Gregarious Life. Social Research Center (CIS) of the Faculty of Social Sciences at the University of Puerto Rico., San Juan, Puerto Rico 00931, Puerto Rico UNAIDS. (2008). http://www.unaids.org/. Retrieved OCTOBER 2014, from http://www.unaids.org/en/media/unaids/contentassets/dataimport/pub/report/2009/jc1521_stigmatisation_es.pdfQuadratin. (February 21, 2014). Quadratin Guanajuato. Retrieved on October 25, 2014, from http://guanajuato.quadratin.com.mx/Mas-de-3-mil-guanajuatenses-padecen-VIH-Sida/Sociedades Bíblicas Unidas. (nineteen ninety five). PSALMS 137: 7,8. In the Reina Valera 95 Bible. SS TAMAULIPAS. (sf). Retrieved on 2014, 10/26, from http: //salud.tamaulipas.gob.mx / programs / preventive-medicine / hiv-prevention-and-control /
